Well this is indeed my 50th blog post, and as an added bonus this post is being posted from Boston, MA. I am staying ate the Boston Park Plaza Hotel and Towers (on the 12th floor!).
So far this week I've been on a teen/adult advisory board for Shire pharmaceutical (shh! Can't say too much on what we discussed), but I can say that it was fun, and I got to meet some great people, some who I had met at a previous meeting a few years ago, so it was good to see them again.
Also the National MPS Society family conference is going on as well. I got to see my nurse Heather, and Dr. Munzer (the doctor who was in charge when I was in the clinical trial.
There is a lot planned for the rest of the week, (don't head home until Monday) including a duckboat tour lol. However, it is cool getting to see all the other MPS patients all together in one place.
So honestly this is a pretty good time for the 50th post, definitely have a lot going on tie with it.
Have you ever wanted to be yourself, just wanted to find your own voice, and be able to speak your mind? However, you think it's just not always that easy to be open in front of other people? Well I feel the exact same way, and I bet a lot of people do. So, this blog is where i've found my voice. I found a way to express my thoughts through writing, you'll either love me or you'll just keep going on to the next blog, but if you think people should be themselves, you just might enjoy this blog.
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