Finally home!

    Ok so today was a long day.. Starting with being woke up at 3am by the fire alarm in our hotel going off. So gues who had just had a spinal tap and had to walk down the stairs from the top floor? Me that's right. No one was harmed, it turned out just to be someone's stove was left on. After 20 minutes we we're let back into our room.

    The flights back were pretty smooth yet, my ears did pop, and were sore. I did have a slight headache on and off as well. 

    But we're home, safe and sound kind of weirded how quickly it came to pass and now it's over. Honestly though I'm glad to be back.

Lumbar puncture

    Yup today was spinal tap, lumbar puncture to be preciese. Just gonna say it was not fun. It went smoothly at least the doctors said it did, so that's a good thing. It did hurt however. After I had to be observed for a couple hours, and I managed to eat some lunch (Chinese)

    Little sore, and a slight head ache (which they said would be normal). Gonna try and rest some. Head home tomorrow, I'm glad the worst part is over.

Where the procedure took place.

IQ testing day

    Today was mostly testing my IQ. It was delayed an hour so for half an hour I laid in the waiting room watching an episode of Gilmore Girls. Then I talked dad into letting us quickly go to one of the cafeterias and found a sandwich and milk for a small lunch.

    The testing was long, some parts were interesting, though some just made my head hurt. A lot of mental problems and trivia. I should get the results in a couple weeks. Hopefully I did well. 

    Tomorrow morning is the big kahuna. Scheduled for 9 am. I'm a little nervous (ok quite a bit nervous), but I think we are going to Applebee's for dinner later tonight, gonna rest a little first though ha.

Meeting the staff

    Today was first day at the hospital I got to see Dr Munzer and my old nurse heather both from the original clinical trial that started elephrase. I also got to meet the new nurses and staff involved in the new trials.

    I had to get labs, bloodwork and a few exams done. The blood sadly had to be drawn from a vine and not my port. That wasn't fun lol. Then mostly we just went over the details and I signed some forms. 

    After we ended up going to red lobster for endless shrimp (love red lobster) and dad surprised me by getting the band R5 new album LOUDER from target. So today was good all in all lol.

The hospital 

The new R5 album LOUDER dad got me.