3rd Poetry post ~New Day~

"New Day"

(By Cameron Watkins)

Things are bad life seems rough

but I gotta try to stay looking tough

cause I know things are about to change

We’ve all done things we may regret

but please try not to worry or fret

the darkness may sleep in your soul

but now its time to take control 

You can’t let people keep you down

when you fall and hit the ground

it may seem nearly impossible

but you gotta always keep standing proud

You don’t have to face it on your own

because your never truly alone

open your heart and you will see

you will always have exactly what you need

The chains their gone, gone for good

the light floods in and brings its warmth

promise me none of this is gonna fade away

its finally time for a brand new day

A brand new day full of friends and warmth

keep them close and you will always feel this way

yes its finally time for a brand new day

50th post!!

Well this is indeed my 50th blog post, and as an added bonus this post is being posted from Boston, MA. I am staying ate the Boston Park Plaza Hotel and Towers (on the 12th floor!).
So far this week I've been on a teen/adult advisory board for Shire pharmaceutical (shh! Can't say too much on what we discussed), but I can say that it was fun, and I got to meet some great people, some who I had met at a previous meeting a few years ago, so it was good to see them again.
Also the National MPS Society family conference is going on as well. I got to see my nurse Heather, and Dr. Munzer (the doctor who was in charge when I was in the clinical trial.
There is a lot planned for the rest of the week, (don't head home until Monday) including a duckboat tour lol. However, it is cool getting to see all the other MPS patients all together in one place.
So honestly this is a pretty good time for the 50th post, definitely have a lot going on tie with it.

Can you hear me now?

    Well today went over really well!! got a pair of loaner hearing aids (really NICE hearing aids by the way), and we got my new ones ordered, they won't be as nice as the ones I'm using until mine are approved and arrive, but they should be a huge difference from my old ones.

    So now I can hear a pen drop lol, its kinda odd because now that I have two hearing aids again everything is a lot louder than I'm used to, but hey I can hear so I'm grateful! 

    And I got them just in time for my trip to Boston, I'm really happy about that, now I should be able to hear everyone when we are having discussions, or when I'm being asked a question, and not just nod my head when I think its the appropriate time lol.

Braces are off!!

Probably should have posted this Friday, but yes braces are off!!! As a bonus, I do not have any stain marks on my teeth.
I do have to wear a retainer all the time, and they will check them in 6 months (ok kinda a bummer), but the braces are off!!
Getting them off honestly hurt, felt like they were trying to pull my teeth out.
But yeah no more braces!